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Wednesday, October 31, 2012

Read all about it: Organ Donation

This is a great call to action.  Please pass this article on to anyone and everyone you know.


Halloween pictures

Sunday, October 28, 2012

Welcome to the Board

After the Minneapolis Heart Institute Gala I had the opportunity to have lunch with the President and CEO of the Heart Institute Foundation.  During that meeting I was asked if I would accept, if nominated, an offer to be on Board of Directors.  Long story short I was and I did.   I am not 100% sure all what this means but I think we help provide input and guidance as to the direction the institute moves from a research perspective, marketing, branding, community interaction etc.  Very exciting to me.

Thursday, October 11, 2012


18 months post implant - clinic up date......Where has the time gone.  I had clinic yesterday and I didn't even realize that it had been 18 months since my Heartmate II LVAD was implanted.  It seems like it was yesterday and yet so long ago.  There are times where I am startled by reminders of my stay in the hospital.  Grey's Anatomy just started a new season and something new is the personal phones all the characters have.  They make a chirp instead of a ring.  I know this because all the clinicians at Abbot have the exact same thing.  I felt like Pavlov's dog hearing the chirp and looking for a nurse.

Clinic was unremarkable and eye opening at the same time.  I feel great and my blood work was all very good.  However my echo came back with an EF of 15.  I have to admit that this is surprising given that my workouts have continued to improve steadily.  My chamber volume is back to 5.9, down from the 8.5 cm when I was first sick.  The doctor astutely pointed out that the echo serves as a reminder that while I am doing very well on the surface, but behind the scenes my heart is "profoundly" compromised and will never get better.  He said it is a good reminder for everyone how fortunate I have been.  I left clinic reflecting on our conversation and how truly lucky I am to have tolerated this therapy so well.  It was pointed out that every day I am not transplanted is a day closer to a cure, a day without immunosupression drugs, and another day that the clock doesn't start ticking down.  I have so much to be thankful for and it surprises me how at ease I really am with where things are at in my life right now.

I ran at the gym tonight.  I just needed a break from the elliptical.  Someone can only do the same exercise for so many straight workouts.  I have been on the elliptical since June of 2011, I needed a change:-)

How about them Yankee's