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Monday, July 23, 2012

Update 27 days in

Tick tock, tick tock, tick tock.  Time marches on.  No call has come in the first 27 or so days on 1A.  Funny thing is that during my time on 1A I have received a call from a LVAD friend that got her own call while on 1B, and another was just put on 1A like me.  In the end it was a dry run as we in the field like to say, lol.  I continue to be in awe of the amazing attitudes of the people who are fighting this each and every day.  Here we are, each one of us, anxiously for the call to come for a HEART TRANSPLANT and what I feel inside is that it is about to be the kick-off at the Superbowl.  Bring it on!  I think I am going off 1A for about 5 days due to some activities at the hospital and then back on for the last 5 or so.  Since my last post we have finished unpacking from moving ourselves across town.  So much for hurry up and wait.................

Monday, July 16, 2012

Quick Update

Wanted to check in with everyone out there who is following me on this journey.  I am 20 days into my 30 days of 1A time and no calls as of yet.  We are hopeful that something happens between now and the 25th.  Attitude is good, physically feel good, and all around all systems are a go.  Even managed to move across town during this.  Fingers crossed and waiting for the call.

Sunday, July 1, 2012

Interesting Debate......My vote....don't change the rule

Very interesting debate going on about LVAD patients and our right to 30 days of 1A time without hospitalization.  The arguments that Dr. Pinney points out are absolutely true....knowing that I had 30 days to use at some point in the future strongly influenced my decision.  What do you think?

Should LVAD patients get 30 days of 1A time?