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Sunday, March 23, 2014

206 days and counting.....

78 days have elapsed since my last post.  My total days as a 1A is approximately 206.  How long is that?  Long enough that some people who started this journey well after me have been transplanted before me.  Worrying about when it is going to happen is totally not productive but at some point it doesn't seem or feel real.  I had a clinic appointment a few weeks ago and things are just fine.  My father is home from the hospital and well into cardiac rehab.  It is exciting to see how much he has recovered since I saw him.  He sounds stronger than he has in nearly 9 months and is back to his normal self.  I am anxious to get back to my life....running, swimming, and do the things that I enjoy.  It is hard as time goes on the maintain the edge, the feeling that you are as ready as possible.  I feel like I have trained for a race and I don't know when the race day actually is.  Hopefully my next post will be on the other side of things....I will be recovering and ready to start my life.  I continue to see eagles and they give me hope for the next phase...........


  1. Great to hear something from you... you've been on my mind and I'm still rootin' for you!

    A year ago, my son never expected to be on the "other side" of transplant. He hoped for recovery and explant. Unfortunately, he was never able to fully recover from any one procedure, before he had to undergo another one. After two LVADs that clotted and numerous balloon pumps that refused to stay working, he was left with no assistance device. He had no other option left. (God bless his donor and family) Now if he can just manage to stay alive on the toxic cocktail of medications and their side effects, maybe he can recover a somewhat normal life.

    You are very fortunate to be tolerating your LVAD and in great physical shape. That should go a long way toward your recovery, when that time comes!

  2. Pete,

    Glad to hear from you. I understand your position and I wish you the best. Where you see eagles, I usually see angels right before someone gets their heart. Watch for the angels and listen carefully for their whispers in your ears. God bless you.