I am 42 and have had a heart transplant. This blog chronicles my journey before, when I had a Heartmate II LVAD for 40 months, and after my transplant. My transplant took place at Cedars Sinai in Hollywood, CA on July 4, 2014.
Tuesday, April 3, 2012
Long Days
Hard to keep up with writing on a daily basis. Yet another reason I am NOT on Facebook, lol. I traveled again yesterday to Dallas for work. It isn't so bad when I get upgraded. However, what does get old and serves as a constant reminder of the fact that our society is not educated on heart disease, is the constant shock of either TSA agents or airline personnel telling me I am too young to have heart disease etc etc. So much opportunity to educate. The days are long hauling an over-size carry on bag with all the LVAD gear, plus an extra checked bag for the shower bag and work out gear I always bring. I still find myself double and triple checking myself and my gear to make sure I have everything. Last night my surgeon shared some newly available information regarding LVAD patients and mean time to recovery being longer than previously thought. That is a lot to process less than 2 months to transplant or 1A time. Lots of thought about immunosupression and side effects of drugs. 52 and a butt days.............
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